Moebius Syndrome News and Research

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Moebius syndrome is a rare disorder affecting the muscles used in facial expression and eye movement. It is also known as congenital facial diplegia, congenital ophthalmoplegia, and facial paresis. The syndrome is present from birth, and affected infants may have feeding difficulties. People with Moebius syndrome lack all facial expressions such as smiling, frowning, or raising eyebrows in surprise.

People with acquired paralysis later in life report higher rates of depression, anxiety

People with facial paralysis are more likely to face depression and anxiety than the general population, especially if the paralysis occurs later in life rather than at birth, according to a recent study from Oregon State University.

23 Jan 2020

Education can help people better understand individuals with facial paralysis

A little bit of sensitivity training can help people form better first impressions of those with facial paralysis, reducing prejudices against people with a visible but often unrecognizable disability, new research from Oregon State University indicates.

21 Jan 2015

Contrary to previous studies, people with Moebius syndrome lead successful lives

A smile means happiness, a frown sadness, a raised brow surprise. Even when languages and cultures differ, people have this universal form of communication. But Moebius syndrome, a rare congenital condition causing facial paralysis, can rob people of this basic connection, affecting social interaction.

21 Apr 2010

NORD urges members of Congress to pass comprehensive health reform legislation

On behalf of the 30 million Americans who are affected by one of the nearly 7,000 rare disorders, the National Organization for Rare Disorders (NORD) urges you to pass comprehensive health reform legislation to assure that every American has access to affordable, meaningful health insurance coverage. Failure to pass such long-overdue legislation this year would be devastating for people with rare diseases, and for millions of others burdened by chronic illness.

15 Sep 2009