Stiff Person Syndrome News and Research

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COMBINEDBrain receives grant from the Chan Zuckerberg Initiative to accelerate research for rare neurological disorders

COMBINEDBrain receives grant from the Chan Zuckerberg Initiative to accelerate research for rare neurological disorders

COMBINEDBrain's Founder and Director, Dr. Terry Jo Bichell, understands the power of collaboration. In her years as a neuroscientist, advocate, and rare patient parent, she has witnessed the field of neurodevelopment transform from a broad focus on autism or intellectual disability, to an era based on rare genetic disorders.

16 May 2023

Research: Faster progression of disablement in stiff person syndrome than originally believed

Research: Faster progression of disablement in stiff person syndrome than originally believed

The American Association of Neuromuscular & Electrodiagnostic Medicine is honoring Goran Rakocevic, MD, with the 2018 Best Abstract Award for his abstract, Quantitative Clinical and Autoimmune Assessments in Stiff Person Syndrome: Evidence for a Progressive Disorder.

3 Sep 2018

Chronic inflammatory demyelinating polyneuropathy commonly misdiagnosed

Chronic inflammatory demyelinating polyneuropathy commonly misdiagnosed

Half of patients referred to a specialist centre with a diagnosis of chronic inflammatory demyelinating polyneuropathy do not actually have the condition, report researchers.

5 Aug 2015

Autoantibody aids identification of hyperexcitability disorders

Autoantibody aids identification of hyperexcitability disorders

Researchers have found that testing for a glycine receptor autoantibody aids the identification of a broad spectrum of autoimmune brainstem/spinal cord hyperexcitability disorders.

29 Oct 2012

Lundbeck announces second annual campaign to raise awareness on rare diseases

Lundbeck announces second annual campaign to raise awareness on rare diseases

Today, Lundbeck announced its second annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance each year on February 28 to raise awareness of rare diseases.

8 Feb 2011

Eric Lancaster receives NORD grant to study stiff-person syndrome

Eric Lancaster receives NORD grant to study stiff-person syndrome

The National Organization for Rare Disorders has awarded a research grant for the study of stiff-person syndrome, a rare acquired neurological disorder, to Eric Lancaster, MD, PhD of the University of Pennsylvania.

11 Jan 2011

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