1. Ginny Ginny United States says:

    I have been so frustrated with my very recent experience. I was on vacation in San Francisco and was hit in the back of my head with a severe pain like I have never felt before. I could not move for over an hour. It was my second day of vacation and my first vacation in 2 years. My vision in my left eye was blurry and I had difficulty keeping my eye open. I have had headaches since I was a child and I am now 44 years old. This was unlike any headache I had ever experienced. I returned home a week later still with the headache, no better and my vision still blurry. The headache affected only the left side of my head which was atypical for me. I returned to work that Monday and my headache worsened along with my vision,nothing helped.I eventually went to see my primary who prescribed fioricet for me. I don't take anything routinely and most meds tried in the past were ineffective so I learned to live with my migraines. This particular headache started to cause me to slur words here and there . I chalked it up to the pain. I finally went to the emergency room and was given morphine IV which intensified the pain. They then gave me a combination of IV meds which did stop the pain. The cat scan was negative and I went home. Six hours later the meds wore off and I was back to where I was. I then went to see a neurologist who suggested botox and put me on prednisone. The prednisone was on a titration schedule and did ease the pain ,however did not stop it. I did not proceed with the botox.When I asked him the side affects of the botox he responded"you lose a few wrinkles" I asked the success rate he had with botox teatments and he was vague. I felt like he did not take my atypical headache seriously and just needed another subject for botox. As soon as the prednisone was completed the pain was back . I was at work and I became unable to speak clearly. I knew what I wanted to say but had so much difficulty saying it. I was so scared and thought I was having a stroke. A co-worker of mine took me to the emergency room  and I was admitted. All the scans and blood work were negative and thats all I kept hearing yet my speech was messed up , I was vomitting from the pain and could not keep my eyes open because of the pain. The hospitalist kept suggesting to my family that it was a psyche issue because all the tests were negative. I was released from the hospital this past Saturday 10/20/12 and my speech still is not fully returned to normal, however has become better. I was placed on Topamax which seems to have made a difference for me. I do take B12 and B6 vitamin supplements. My Complex migraine lasted from 9/22/12 to 10/19/12. No one should ever have to suffer with that level of pain. It was the ER physician who diagnosed me with the complex migraine. I am a registered nurse and I amj very disappointed in physicians,neurologists and hospitalists who still don't take this condition seriously because the tests are negative. I only hope they themselves never have to experience this first hand before they change their attitudes and responses to those of us that do. God bless you all.

    • Argentina Bruce Argentina Bruce United States says:

      I have noticed that most females deal with the complexity migraine. I wonder why when Dr.'s don't have the answers they automatically say that its something we are making up believe me these types of migraines and their severity in different forms of degrees are not something we want to impose on anyone.I have had them for about a year now....I wish i had the ability to never had made this thing a part of my life just want to understand what to do in order to live a normal life

The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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