I have a Pelvic plexifrom NF, this has been painful since I was 19 yrs old, I am now 60. The pain over the past couple of years has been constant and at times causes me to limp. I have coped well and have managed on minimal pain relief when pain is too much. I have read the article on the use of Gleevac and I sincerely hope it will work. I shall look forward to its use in Australia. Regards Margaret