Opinion

... in response to Ataxia Treatment
  1. Gloria Schechterly on Ataxia Treatment
    Gloria Schechterly Gloria Schechterly United States says:
    September 25, 2014 at 11:57 AM

    Our adopted son, now 39 Years of age was diagnosed in 2009 with cerebral ataxia.
    His familial tremors preventing him from feeding himself. A nurse from India told me that they treated their patients with this problem Vitamin A, 250 mg once a day. I put our son on this and within one week he was feeding himself. In 2013 his gait became worse Dr. Jill Gotoff, Geisinger Pediatric Neurologist put him on CQ 10 400 mg twice a day. Helped somewhat but still having gait and walking problems. She referred him to another neurologist at Gesinger, Dr. Perez who started him on Bioten 5,000 mcg twice a day. This has made a significant difference with his walking and also order physical therapy for 2 months and off two months etc. Not only is his walking improved but also his response time to questions. He now is more sociable with speaking at Sun Com, sheltered workshop. He is more aware of his surroundings and what is going on in the world. Just significantly his total mind and body improvement. Gloria Schechterly, retired nursing faculty Ph.D, R.N.

    Reply
    • Please Help
      MichelleandGeorge Obregon MichelleandGeorge Obregon United States says:
      January 16, 2016 at 1:03 PM

      My father is 65 years old and has ataxia. He was diagnosed 2 years ago. I am interested in the Biotin vitamin you state above. Is it the regular vitamins sold at your local drugstore or was it something the doctor had to give you? Please help. Thank you! i am desperate.

      Reply
    • AOA2
      Hussain Namous Hussain Namous United States says:
      January 16, 2016 at 1:08 PM

      I was recently diagnosed with AOA2 and I have gait problems and what not. What would help?

      Reply
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