My mother was diagnosed with neurosarcoidosis in January of 2012, we lost her in August of 2012. Her problems originally started in 2000. Since 2000, she had a brain biopsy twice, a lung biopsy,i lost track of the number of lumbar punctures, numerous blood tests,radition, steroids, and several months of physical therapy. How wonderful it would have been,if back in 2000 she may have been able to be diagnosed at that point, instead of so many years later. Perhaps,it would have cut down on the amount of other painful tests. And perhaps her treatment would have been different and we would have had her with us longer. The last couple months of her life, the doctors just gave up and told me to try and keep her comfortable. It was heart wrenching to see my mother go from an active woman that cut her own firewood, to someone that i had to feed and change. I'm so thankful for the research that is being done, and I pray every day that it will continue, and that they continue to make progress.
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