Our HD community needs to be more aggressive in networking with each other and build a strong army of HD patient advocates.  It is unbelievable that such a devastating disease such as HD is still hardly heard of.  You would think that because it is a genetic disease that causes so much pain and suffering, is financially devastating to the families and costly to the government, goes from one generation to another -  and for which the genetic mutation is known - that the community would be up in arms that the NIH would be pouring all the funding necessary to finally end it! HD is a war that must be taken seriously!  Our HD families just sit and wait to see who else will be taken down by the enemy...Huntington's Disease.  We need more HD warriors and we need the NIH to step up to the plate to make this the last generation of Huntington's Disease; otherwise, will there ever by an end to this war against HD?  By the way...that number that someone came up with that there are 30,000 people in the U.S. with HD....that's a bunch of bologne.  I don't know who came up with that, but it is not true.  No one has taken the responsibility of getting true number for individuals affected by HD, and I strongly suspect that you can easily double that number of 30,000.  Why am I so passionate about this cause?  I've lost my late husband t HD, all three of my children inherited HD, I lost my youngest daughter to HD five years ago, my oldest daughter one year ago, and only remaining child, my son, has been in a nursing home for eight years.  My two grandchildren are now at risk to inherit HD.