1. Government Shutdown - Impact on Child with Terminal Disease
    Glenn O'Neill Glenn O'Neill United States says:
    October 6, 2013 at 10:09 PM

    Please bring this story with you to Congress:

    Please see this Live Interview link we did yesterday on National TV MSNBC.  We are parents from Columbia, SC, and my daughter's life is in the balance.  

    MSNBC:  The shutdown's potentially life or death consequences for a three year old little girl.  
    http://t.co/qEN4gzErd2

    As parents, we are even more pressed now to raise the funds needed on our own ($2.5M in 9 months) knowing that the Government processing of NIH grants being sought are being backlogged.  In addition, FDA not fully staffed causes delays in dependent project tasks to keep the Clinical Trial on schedule.  With the degenerative rapidly progressing nature of this disease (Sanfilippo Syndrome Type A), we do not have the luxury of time, and weeks or months could be the difference between life or death for my daughter. We plead of you to pass this on to your colleagues and Washington if possible.

    Thank you,

    Glenn O'Neill (Eliza's Father)
    803-413-0525
    www.facebook.com/ElizaOStory
    www.gofundme.com/ElizaONeill
    Twitter: @GONeill4eliza

    Reply
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