Stereotypes about who will use online support groups are wrong, according to research at the University of Wisconsin-Madison. The researchers found that age, income and education did not predict participation, although minorities were not as active as other users.
The percentage of women with breast cancer participating in online support groups is significant and has been growing steadily over the past decade. This new research provides insights about the characteristics of women who are more likely to participate in these groups when barriers to computers and Internet access are removed.
In the study conducted at the UW-Madison Center of Excellence in Cancer Communication Research, 144 women who were recently diagnosed with breast cancer were provided free computer hardware, Internet access and training in how to use an online health education and support system, which they were able to use for six months. The researchers then examined who was most likely to use the online support groups.
While socioeconomic status did not generally predict participation in these groups, there were trends toward more active participants expressing more positive physical, psychological and social status than less active participants. Specifically, there were trends toward more active participants reporting higher energy levels, a more positive doctor-patient relationship, fewer concerns about breast cancer and higher perceptions of support from one's family.
The study is published in the January/February 2006 issue of the journal CIN: Computers, Informatics, Nursing.