Advances in pain and palliative care for adults have been significant in the past decade due in part to increased recognition, support and use by caregivers and patients.
While acknowledging that lessons from adults can be borrowed to help pediatric patients, an international team of pediatric palliative care specialists is also calling for increased research to address children's differing physical, psycho-social and clinical needs.
In a review article to be published by the journal Lancet on its Web site on Aug. 16, and later in a print edition, Joanne Wolfe, MD, MPH, of Dana-Farber Cancer Institute and Children's Hospital Boston and her coauthors outline steps to further the development of pediatric palliative care standards and objectives.
"Emerging data from our research suggest that there are a lot of opportunities for improvement in the area of pediatric pain and palliative care," explained Wolfe, the paper's senior author. "If we do not become a community of interested individuals moving this field forward, there isn't going to be the opportunity systematically to figure out ways to do a better job of taking care of these children and their families."
Pediatric palliative care focuses on ensuring the best possible quality of life for children whose illness makes it likely that they will not live to become adults, and focuses on the physical, emotional, social and spiritual needs of the child as well as supporting the family.
In the United States there are over 300,000 children living with complex chronic conditions that may lead death in childhood or premature death and who may benefit from palliative care.