Quality of life for children with cerebral palsy

Most children aged 8-12 years with cerebral palsy will have similar quality of life (QoL) to other children.

The findings should guide social and educational policy to ensure that disabled children participate fully in society, conclude authors of an Article published in this week’s edition of The Lancet.

Professor Allan Colver, Sir James Spence Institute, Newcastle University, Royal Victoria Infirmary, Newcastle, UK and colleagues selected 1,174 children with cerebral palsy in seven European Countries, of which 818 participated in the study. Of these, 318 with severe intellectual impairment could not self-report (and will be subject to a separate study later), but 500 children self-reported their QoL using KIDSCREEN, an instrument which assesses quality of life across 10 categories.

The researchers found that for children with cerebral palsy, type and severity of impairments did not affect QoL for in six KIDSCREEN categories: psychological wellbeing, self-perception, social support, school environment, perception of financial resources, and social acceptance.

However they found that specific impairments were associated with poorer QoL in four catgories. Children with poorer walking ability had poorer physical wellbeing; children with intellectual impairment had lower moods and emotions and less autonomy, and children with speech difficulty had poorer relationships with their parents. Further they found that pain reduced children’s QoL across all categories.