Geisinger Health System's Genomic Medicine Institute has been approved to receive a $1.4 million research award from the Patient-Centered Outcomes Research Institute (PCORI) to study how best to share genomic lab results with patients. The study is part of a portfolio of projects that will advance the field of patient-centered comparative effectiveness research and provide patients with information that will help them make better-informed decisions about their care.
Marc S. Williams, M.D., director, Genomic Medicine Institute, Geisinger's Sigfried and Janet Weis Center for Research, will lead the research. The project, which includes researchers from Penn State and Virginia Tech, will focus on the best way to share genomics results with patients and clinicians to promote shared decision making.
Patient-centered communication of genomic laboratory reports is becoming more important as information from an individual's genes (genomic information) becomes more frequently used to diagnose and manage medical conditions. Currently genomic test results are only shared with clinicians.
According to Dr. Williams, the study will identify how best to communicate genetic laboratory information, what part of the communication is of the greatest value to patients and clinicians and how best to integrate the reporting into the day-to-day workflow at Geisinger in a way that is relevant and helpful.
"We believe that a new type of genomic test report, tailored for patient as well as clinician use, promotes shared decision making and trust," said Dr. Williams. "It also allows patients to be more involved in the management of their disorders, better navigate the health care system, and make more informed decisions about their health and health care in conjunction with their clinicians." he added.