Bioethics News and Research

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Clinicians need to discuss disorders of consciousness with ethical sensitivity

New tools have confirmed high rates of misdiagnosis of patients with chronic disorders of consciousness, such as the vegetative state. An increasing number of patients' families wish to use these novel techniques for diagnosis, prognosis, and treatment.

3 Aug 2012

Health risks of egg donation for young females

News is just breaking in India about Sushma Pandey, a 17-year-old young woman who died in 2010, two days after her third "egg donation." Her death is being attributed to the procedures used to extract eggs from healthy, desirable young females like Ms. Pandey. These eggs are often resold to affluent westerners for use in commercial production of their children. Her post-mortem report states she had "one abrasion, four contusions and a blood clot in the head, plus six injection marks" as well as "congestion in the ovaries and uterus."

14 Jul 2012

Bioethicists discuss personal experiences with cancer in new book

"Since my diagnosis, I had been immersed in a crash course in real-world medical ethics," writes Rebecca Dresser, editor of Malignant: Medical Ethicists Confront Cancer, published by Oxford University Press. She and five other bioethicists discuss their personal experiences with cancer or caring for loved ones with the disease, with lessons for doctors and nurses, patients, and caregivers.

14 Jul 2012

Johns Hopkins Berman Institute of Bioethics receives pilot project award from PCORI

The Johns Hopkins Berman Institute of Bioethics has been received one of 50 pilot project awards by the Patient-Centered Outcomes Research Institute (PCORI) to study stakeholder views of streamlined informed consent options for comparative effectiveness research (CER) studies.

12 Jul 2012

Researchers discover new gene mutations associated with megalencephaly

A research team led by Seattle Children's Research Institute has discovered new gene mutations associated with markedly enlarged brain size, or megalencephaly.

30 Jun 2012

SCRI receives NIH grant for Science Adventure Lab program

Over the past three years, more than 20,000 students at 135 schools in Washington State have participated in the Science Adventure Lab program, an initiative launched by Seattle Children's Research Institute in 2009.

26 Jun 2012

Changing guidelines threaten important HIV drug trial

In the battle against HIV/AIDS conditions on the frontlines are constantly in flux as treatment, research and policy evolve. The landmark HIV Prevention Trials Network (HPTN) 052 study, which established that antiretroviral treatment in people who are HIV positive decreases the likelihood of transmitting HIV to their sexual partners, was no exception.

15 Jun 2012

Young adults, adolescents with mental health disorders more likely to become long-term opioid users

Long-term use and abuse of opioid painkillers, such as OxyContin and Vicodin, has markedly increased in the United States in the last two decades. Of note, prescription opioids constitute 86.9 percent of prescription drug misuse among high school students. And last week in a two-day U.S. Food and Drug Administration public meeting, officials questioned the use of long-term opioids for chronic pain due to a lack of evidence for the effectiveness and concerns about the potential risk for addiction.

7 Jun 2012

Modern bioethical dilemmas

How far is too far? 60 cases illustrating modern bioethical dilemmas

2 Jun 2012

Personalized medicine and the Human Genome Project

It’s nearly a decade since the completion of the Human Genome Project, (1) which aimed to sequence the complete human genome.

1 Jun 2012

Johns Hopkins receives $15 million NIH grant to establish CFAR

Johns Hopkins University has been awarded $15 million over the next five years from the National Institutes of Health to establish the new Center for AIDS Research (CFAR). CFAR will support more than 180 HIV investigators from the University's Bloomberg School of Public Health, the School of Medicine, the School of Nursing and other schools. A major priority for CFAR will be to address Baltimore's HIV epidemic in addition to training new investigators and conducting international research.

5 May 2012

Researchers discover two defective genes that cause auriculocondylar syndrome

Researchers at Seattle Children's Research Institute and their collaborators have discovered a pair of defective genes that cause a rare congenital malformation syndrome that can make it impossible for the child to breathe or eat properly without reparative surgery.

4 May 2012

FDA recommended to continue monitoring drugs' safety after approval

Pharmaceutical drugs approved by the Food and Drug Administration (FDA) but later re-called from the market-such as the antidiabetic drug Avandia and pain-reliever Vioxx-were the impetus for an Institute of Medicine committee report released yesterday, recommending that the FDA take proactive steps to continue monitoring drugs' safety after initial approval and throughout their time on the market.

3 May 2012

23andMe, Khan Academy partner to celebrate DNA Day

To celebrate DNA Day, Khan Academy, the world's online classroom, and 23andMe, a leading personal genetics company, are working together to promote the importance of genetics education. 23andMe's Genetics 101 and Human Prehistory 101 video series are now available on KhanAcademy.org.

21 Apr 2012

Streamlining federal restrictions on low-risk clinical comparative effectiveness research

In an opinion article published in this week's theme edition of the Journal of the American Medical Association focusing on comparative effectiveness research, a team of Johns Hopkins University bioethicists argues forcefully for streamlining federal restrictions on at least some low-risk clinical comparative effectiveness research, instead of easing them - as is now proposed - solely for low-risk social and behavior research involving surveys, interviews and focus groups.

18 Apr 2012

Paper points out decision-making capacity of patients with dementia

Luis Carlos álvaro, a clinical neurologist at the Hospital of Basurto (Bilbao) and lecturer at the University of the Basque Country (UPV/EHU), has had an article published on the capacity of patients with dementia to make decisions. It is entitled Competencia: conceptos generales y aplicación en la demencia (Competence: general concepts and application in dementia), and has been published in the journal Neurología.

17 Apr 2012

Web-based decision guide reduces uncertainty about breast cancer prevention options

When women at high risk of breast cancer viewed a customized web-based decision guide about prevention options, they were more likely to make a choice about prevention and to feel comfortable with their choice, a new study finds.

16 Apr 2012

Cholera vaccination pilot project begins in Haiti

"A year and a half after cholera first struck Haiti, a tiny portion of the population on Thursday began getting vaccinated against the waterborne disease that has infected more than 530,000 Haitians and killed more than 7,040," the New York Times reports.

16 Apr 2012

Annual Shallenberger Lecture In Ethics to take place on April 17

Myra Christopher, the Kathleen M. Foley Chair for Pain and Palliative Care at the Center for Practical Bioethics and a nationally renowned patient advocate, will deliver the 19th annual Shallenberger Lecture In Ethics April 17, 2012 at 12:00 noon.

16 Apr 2012

Act of coming out associated with better health for LGB adults

A comprehensive new study led by Boston University School of Public Health (BUSPH) researcher Emily Rothman shows that two-thirds of lesbian, gay and bisexual adults in a representative Massachusetts sample reported receiving positive support from their parents after coming out to them. Their incidence of mental health and substance abuse problems was significantly lower than those who did not receive support, the authors reported.

11 Apr 2012