Sudden Unexpected Death in Epilepsy News and Research

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Cedars-Sinai and Huntington Health collaborate to bring epilepsy care closer to patients

Cedars-Sinai and its affiliate Huntington Health are collaborating on a new Epilepsy Monitoring Unit to bring treatment and care closer to epilepsy patients in the San Gabriel Valley.

6 Mar 2023

New insights could lead to better treatments for Dravet syndrome and related conditions

Children with Dravet syndrome, a severe form of epilepsy that begins in infancy, experience seizures, usually for their entire life.

27 Apr 2022

UVA researchers identify an unknown trigger for epilepsy seizures

Researchers at the University of Virginia School of Medicine have uncovered how problems in cortical microcircuits in the brain can trigger epilepsy seizures.

20 Oct 2021

UVA research sheds new light on why sleep increases risk of Sudden Unexpected Death in Epilepsy

New research from the University of Virginia School of Medicine reveals why sleep can put people with epilepsy at increased risk of sudden death.

6 May 2021

New research sheds light on what causes sudden unexpected death in epilepsy

New research from the University of Virginia School of Medicine has shed light on the No. 1 cause of epilepsy deaths, suggesting a long-sought answer for why some patients die unexpectedly following an epileptic seizure.

28 Apr 2021

Simple device could help stop 'sudden unexpected death in epilepsy'

More than one-third of the people in the United States who have epilepsy are at risk for a deadly complication called "sudden unexpected death in epilepsy."

12 May 2020

Bad gene associated with sudden death in epilepsy and breathing problems

In sudden death in epilepsy, people stop breathing for no apparent reason and die. Now, a group of UConn neuroscientists have a lead as to why, they report in the journal eLife.

21 Jun 2019

Study shows risk of sudden death may apply even to people with well-controlled epilepsy

People with epilepsy have a rare risk of sudden death. A new study shows that risk may apply even to people whose epilepsy is well-controlled, which is contrary to previous, smaller studies that showed the risk was highest among those with severe, difficult-to-treat epilepsy.

20 Jun 2019

New software created to encourage physician-family conversations about epilepsy

Physicians can now be alerted to pediatric patients' risk of sudden unexpected death in epilepsy, or SUDEP, during routine primary care visits by using software developed and commercialized by a researcher-entrepreneur at the Indiana University School of Medicine.

6 Feb 2019

Researchers develop new tool to screen for sleep apnea in people with epilepsy

Rutgers researchers have developed a tool to help neurologists screen for obstructive sleep apnea in people with epilepsy whose seizures can be magnified by sleep disorders.

27 Sep 2018

Inhaled carbon dioxide triggers group of neurons responsible for arousal

Breathing too much carbon dioxide can be deadly, but it can happen during sleep if a particular sleeping position causes an obstructed airway or because of a medical condition like sleep apnea.

30 Jan 2018

Wristband devices may improve detection and characterization of epileptic seizures

New research published in Epilepsia, a journal of the International League Against Epilepsy, indicates that wristband devices may improve the detection and characterization of seizures in patients with epilepsy.

30 Oct 2017

New guidelines provide practical information on sudden unexpected death in epilepsy

There is an uncommon risk of death that people with epilepsy and their loved ones may not know about. The risk is called sudden unexpected death in epilepsy, or SUDEP. Now the American Academy of Neurology and the American Epilepsy Society have co-developed a new guideline on SUDEP, published in the April 24, 2017, online issue of Neurology, the medical journal of the American Academy of Neurology, and presented at the 69th AAN Annual Meeting in Boston, April 22 to 28, 2017.

25 Apr 2017

Study: Epilepsy patients want physicians to share information about rare risk of death

People with epilepsy want their health care providers to tell them about a rare risk of death associated with the disorder, according to a preliminary study released today that will be presented at the American Academy of Neurology's 69th Annual Meeting in Boston, April 22 to 28, 2017.

24 Feb 2017

Epilepsy Foundation launches new campaign to raise awareness of SUDEP among people with epilepsy

In response to the urgent need to raise awareness of Sudden Unexpected Death in Epilepsy (SUDEP) among people with epilepsy and their caregivers, the Epilepsy Foundation’s SUDEP Institute today issued a special expert consensus report, #AimForZero: Striving Toward a Future Free from Sudden Unexpected Death in Epilepsy.

16 Sep 2016

Epileptologists develop mobile sensor that can detect seizures

For epilepsy patients and attending physicians, it has been a challenge to correctly assess the frequency and severity of epileptic seizures without inpatient recording equipment. A consortium coordinated by the epileptologists of the University Hospital Bonn is now developing a mobile sensor that can detect seizures.

7 Apr 2016

Heart rate variability may increase epilepsy risk

Doctors have long characterized epilepsy as a brain disorder, but researchers at Case Western Reserve University have found that part of the autonomic nervous system functions differently in epilepsy during the absence of seizures.This connection to the involuntary division of the nervous system may have implications for diagnosing and treating the disease and understanding sudden unexpected death in epilepsy

10 Mar 2016

Early promise for cannabis extract treatment in epilepsy

A preliminary, open-label study suggests that cannabidiol may be a useful adjunctive treatment in adults and children with intractable epilepsy.

7 Jan 2016

Epilepsy deaths should be considered a public health priority, say doctors

Epilepsy is not a public health priority, yet it takes more lives than sudden infant death syndrome (SIDS) or fires, according to an article reviewing the topic. Doctors say epilepsy deaths should be a focus of research and education to understand and prevent those deaths, according to the "Views and Reviews" article published in the December 16, 2015, online issue of Neurology, the medical journal of the American Academy of Neurology.

17 Dec 2015

Study reveals gene mutation that increases risk of SUDEP in patients with mild forms of disease

Researchers in the Adult Genetic Epilepsy Program of the Krembil Neuroscience Centre have discovered a gene mutation that increases the risk of sudden unexpected death in epilepsy (SUDEP) in patients with mild forms of the disease.

16 Oct 2015