... in response to Tarlov Cyst / Perineural Cysts
  1. Lisa Watts Lisa Watts United States says:

    The article suggests that draining the cysts and filling them with fibrin glue is an effective treatment. In reality,it has been proven to only give temporary relief because the cysts eventually fill back up. I do not know of one person that has had this done that benefited from it and didn't have to have the surgery anyway.

    The article also suggests that CT myelograms and spinal injections can be a form of treatment. Both of these things are contraindicated for those with this disease. They can cause a spinal fluid leak, more cysts to form, increase in pain and symptoms, and arachnoiditis (a horrendous and extremely painful spinal disease worse than tcd).

    The articles you referenced need to be more informed and change their information. I too suffer from this disease and have ran a private support group on Facebook for people that suffer from this disease for 4-5 years. I've seen thousands of people's stories and talked to hundreds of people with this disease. If you are someone you know suffer from this disease please join my group, "Tarlov Cyst Support for Cysters and Mysters" for one on one information and support from people that actually suffer from this disease.


    TC Sufferer/ Owner and Admin of Tarlov Cyst Support for Cysters and Mysters

The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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