1. Kay Karen Lambert Kay Karen Lambert United States says:

    Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) is a syndrome, hence its name.  

    Acquired Immune Deficiency Syndrome (AIDS) is also a syndrome.

    CFIDS & AIDS are not diseases.  -->

    A syndrome is a syndrome.

    Allied government mindfully left the "ID" out of CF(ID)S to create the silly, belittling Orwellian name, "CFS."

    Myalgic Encephalomyelitis (ME) is a disease, just like malaria or MS ~ with specific hallmark diagnostic biomarkers.

    CFIDS is AIDS-like (syndromes)
    ME is MS-like (diseases)

    "CFS/ME" is not interchangeable, or accurate.  

    ME patients do not have CFIDS. While many do, not all CFS patients qualify for a ME diagnosis (by International Consensus Criteria (ICC)).

    Just like a CFSer cannot just wake-up and decide "hey, I have malaria."  A CFSer cannot just wake-up and arbitrarily decide that they have ME.  Until the day comes when a doctor diagnoses you with ME, then you have CFS --> a syndrome.

    A CFSer stating that they have ME is the equivalent of an AIDS patient stating that they have MS --->  it is wrong

    Syndrome or disease, patients suffer and die of both.

    E.g., AIDS (syndrome) patients die all the time.

    People ignorantly talk about AIDS like its one thing, but by present-day definition, there are 29 separate and distinct DISEASES under the AIDS SYNDROME umbrella (everything from TB, malaria to lung and cervical cancers); Only every 29th AIDS patient is alike.

    There have to be 29 types of CFS.  {1 type being ME}
    There is only one type of ME.

    CF(ID)S & ME will never be the same, because diseases and syndromes are two different things.

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