1. Kay Karen Lambert Kay Karen Lambert United States says:

    Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) is a syndrome, hence its name.  

    Acquired Immune Deficiency Syndrome (AIDS) is also a syndrome.

    CFIDS & AIDS are not diseases.  -->

    A syndrome is a syndrome.

    Allied government mindfully left the "ID" out of CF(ID)S to create the silly, belittling Orwellian name, "CFS."

    Myalgic Encephalomyelitis (ME) is a disease, just like malaria or MS ~ with specific hallmark diagnostic biomarkers.

    CFIDS is AIDS-like (syndromes)
    ME is MS-like (diseases)

    "CFS/ME" is not interchangeable, or accurate.  

    ME patients do not have CFIDS. While many do, not all CFS patients qualify for a ME diagnosis (by International Consensus Criteria (ICC)).

    Just like a CFSer cannot just wake-up and decide "hey, I have malaria."  A CFSer cannot just wake-up and arbitrarily decide that they have ME.  Until the day comes when a doctor diagnoses you with ME, then you have CFS --> a syndrome.

    A CFSer stating that they have ME is the equivalent of an AIDS patient stating that they have MS --->  it is wrong

    Syndrome or disease, patients suffer and die of both.

    E.g., AIDS (syndrome) patients die all the time.

    People ignorantly talk about AIDS like its one thing, but by present-day definition, there are 29 separate and distinct DISEASES under the AIDS SYNDROME umbrella (everything from TB, malaria to lung and cervical cancers); Only every 29th AIDS patient is alike.

    There have to be 29 types of CFS.  {1 type being ME}
    There is only one type of ME.

    CF(ID)S & ME will never be the same, because diseases and syndromes are two different things.

The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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