1. Vigorous Achalasia
    Rees Andrew Rees Andrew United States says:
    October 24, 2020 at 2:43 AM

    Vigorous Achalasia w/ Dysphagia and Nutcracker Esophagus has to be in the top 5 most brutal and painful diseases.  Imagine a heart attack times four.  Esophageal Spasm pain is on a different level of misery as it can last for hours.  You also can’t swallow, and if you do it’s extremely painful.  But it’s a “rare disease”, so no one cares except for the people that have to live with evil disease that rarely gets better with surgery, balloon dilation, Botox injections, meds, etc.

    Reply
    • As someone with achalasia....
      Leah Mazdra Leah Mazdra United States says:
      August 5, 2021 at 10:45 PM

      100% agree with this. I underwent a Heller Myotomy in 2018, and since have had 3 dilations of my esophagus, all of them failing. This disease was made by the devil himself. The feeling of everything being stuck in your chest all the time, its debilitating. Constantly feels like choking, which causes my mouth to salivate, which I then have to swallow, and the saliva subsequently gets stuck halfway down my esophagus, and the process repeats. I'm currently looking at my second Heller Myotomy at 21, and had my first done at 18. This disease.... it robs you of your life. Slowly becoming a skeleton because you don't want to eat anything because you know it'll take at least 15 min for a single bite to go down. So many impairments with cognition because of lack of nutrients, its embarrassing to eat in public, being constantly hungry... the list goes on. The worst though is having an insane amount of pressure in your chest from the food, but you literally cannot do anything to get it down, except swallow liquids, which only works half the time. It is brutal and more people need to know about how intensely it can impact someone's life.

      Also, I am so sorry for the long message, today has been a really bad day for my achalasia and its been causing me a lot of frustration. Along with the fact that I may need surgery in the upcoming future... it's really hard.

      Reply
      • I had forgotten about esophageal spasms! I’ve never had one because on top
        Carmen Garcia Carmen Garcia United States says:
        June 26, 2023 at 10:00 AM

        I had forgotten about esophageal spasms! I’ve never had one because on top of my other pain I think it was just flat out kill me and I don’t think I have much care. But I have a friend that suffers with that and her heart quit because her pain level was so high. she coded and the second she regained consciousness, the first thing she did was try to hit the dr with a lunch tray. She was that pissed at being alive. I kid you not… I still laugh about that to this day. She is gone now, but damned if she had didn’t do whatever single one of us has wanted to do to a doctor every now and then.

        Reply
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