1. Kath Jones Kath Jones United States says:

    In 1991 I fell and broke my leg - had pins and plates put in the entire calf. Within a few years I started feeling fatigued. I didn't want my husband or son to hug me, let alone touch me, because it hurt.  I complained to my doctor who suggested a sleep test. I was diagnosed with severe sleep apnea, so now I have been on a CPAP for the past 15 years.  It helps some but not all the symptoms. I continue to ask the various doctors I saw (yes, I say various because with the military the doctors change all the time) why was I still feeling so bad.  I don't know about now, but the military doctors at the time would not recognize Fibromyalgia.  After being sent to a civilian doctor, she "heard" me and immediately ran some tests.  I thought Savella worked great but my current insurance won't pay for it. The neurologist recommended 300 mg of Gabapentin 3 times a day.  It is ok, but I occasionally need a few Aleve.  I was recently diagnosed with Osteoarthritis in my knee (that took a year to get that problem believed) and doctor says Aleve twice a day, if needed, is ok.  Over the years, I too have found that I have to be able to get enough sleep ( even if it means taking something to knock me out), eat right - no salt, low sugar, less processed foods, some light exercise - but don't overdo it: more than an hour working in the garden will do me in, and be prepared to rest if you know things are going to trigger symptoms.  Running all day errands will be do me in, so I know I will have to take it easy the next day.  I have always said all these years, I don't care what anyone calls it, I know I am in pain if some one touches me, I bump something, and the fall I had to break my leg did something to me.

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