Haemophilia B News and Research

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WHO expands essential medicines lists with new cancer and diabetes treatments

Today, the World Health Organization (WHO) has released updated editions of its Model Lists of Essential Medicines (EML) and Essential Medicines for Children (EMLc), adding new treatments for various types of cancer and for diabetes with associated comorbidities such as obesity.

5 Sep 2025

Scientists create liver organoids with functional blood vessels

Liver organoids with proper blood vessel networks have been successfully produced, as reported by researchers from Institute of Science Tokyo and Cincinnati Children's Hospital Medical Center.

17 Jul 2025

The role of saliva in Hemophilia A coagulation

A recent study led by MedUni Vienna provides new insights into the mechanisms of coagulation in persons with haemophilia A, the most common form of haemophilia. The research team was able to show that saliva contains special vesicles that trigger rapid coagulation of the blood of haemophilic patients. The results, which were recently published in the renowned scientific journal Blood, contribute significantly to a better understanding of the disease.

15 Jan 2025

Concizumab shows promising results for hemophilia patients

For people with the bleeding disorder hemophilia, life can seem like one continuous state of alertness. If they accidentally cut their finger while chopping vegetables, they have to immediately administer the clotting factor protein that their body either lacks or does not produce enough of.

2 Dec 2024

Age plays a critical role in the diagnosis of von Willebrand disease, study reveals

New research by RCSI University of Medicine and Health Sciences published in Blood journal has revealed that the age at which individuals are tested for von Willebrand disease (VWD), a common bleeding disorder, significantly affects their diagnosis.

8 Jan 2024

Monthly prophylactic fitusiran injections effective in reducing bleeds in patients with hemophilia A or B

Monthly prophylactic injections of fitusiran are effective in reducing bleeds in patients with hemophilia A or B, according to randomized controlled trials publishing simultaneously in The Lancet and The Lancet Haematology journals.

30 Mar 2023

Rare Diseases Action Plan for England focuses on providing better care and reducing health inequalities

A new Rare Diseases Action Plan for England will be published today (Tuesday 28 February) that will ensure those living with these conditions receive better care and treatment, fairer access to testing and have continued support.

28 Feb 2023

New milestones for the treatment of hemophilia

Hemophilia A is the most common severe form of hemophilia. It affects almost exclusively the male sex. The disease can usually be treated well, but the medicines known so far do not help all of those affected.

9 Feb 2023

New AI algorithm may quickly, effectively diagnose deep vein thrombosis

A team of researchers are developing the use of an artificial intelligence (AI) algorithm with the aim of diagnosing deep vein thrombosis (DVT) more quickly and as effectively as traditional radiologist-interpreted diagnostic scans, potentially cutting down long patient waiting lists and avoiding patients unnecessarily receiving drugs to treat DVT when they don't have it.

4 Oct 2021

New project develops more efficient treatment approaches for cardiovascular diseases

Within the framework of a European collaborative research project, Oliver Müller, professor at the Faculty of Medicine at Kiel University and Consultant at the Department of Internal Medicine III, University Medical Center Schleswig-Holstein, Campus Kiel, will receive 1.4 million Euros for the project "CardioReGenix: Development of Next-Generation Gene Therapies for Cardiovascular Disease".

21 Dec 2018

Researchers uncover genes that play a key role in the inactivation of X chromosomes

In cell biology, men and women are unequal: men have an X chromosome, while women have two. How can we get around this difference?

19 Dec 2018

ABPI associated with NHS for 70 years in pharmaceutical research

In this special year, both the NHS and the Association of the British Pharmaceutical Industry are celebrating our respective 70th anniversaries. The histories of these two organizations have been inextricably linked since 1948 and our relationship with the NHS continues to go from strength to strength.

25 Jun 2018

New, more easily administered therapies offer benefits for bleeding and clotting disorders

In three studies being presented today during the 59th American Society of Hematology (ASH) Annual Meeting and Exposition in Atlanta, researchers report remarkable benefits from new, more easily administered therapies for bleeding and clotting disorders.

11 Dec 2017

Gene editing within a living person for the first time

Genetic editing has been performed in the laboratory until now. Living cells within Petri-dishes have been put under the microscope while gene editing tools such as CRISPR were used to cut, nick and replace parts of the DNA or genome that is defective with bits of DNA that is correct in its sequence. Now doctors in California have attempted to edit cells within a living person.

19 Nov 2017

Contaminated blood scandal that infected thousands in 70’s and 80’s being investigated

In the 1970’s and 80’s thousands of people were infected with hepatitis C and HIV due to transfusion of contaminated blood that contained these viruses. A spokesperson for Theresa May, James Slack, today said that she, her health secretary Jeremy Hunt and the MPs sat together to announce a full review and inquiry into this disaster.

12 Jul 2017

Octapharma uses G:BOX Chemi XX6 imager to accurately characterise large therapeutic proteins

Syngene, a world-leading manufacturer of image analysis solutions, is pleased to announce its G:BOX Chemi XX6 multi-application-functional imager is being utilised by scientists at major human protein R&D company, Octapharma Biopharmaceuticals GmbH in Germany for analysing a range of large proteins.

From Syngene 17 Mar 2017

Haemophilia B News and Research

WHO expands essential medicines lists with new cancer and diabetes treatments

Scientists create liver organoids with functional blood vessels

The role of saliva in Hemophilia A coagulation

Concizumab shows promising results for hemophilia patients

Age plays a critical role in the diagnosis of von Willebrand disease, study reveals

Monthly prophylactic fitusiran injections effective in reducing bleeds in patients with hemophilia A or B

Rare Diseases Action Plan for England focuses on providing better care and reducing health inequalities

New milestones for the treatment of hemophilia

New AI algorithm may quickly, effectively diagnose deep vein thrombosis

New project develops more efficient treatment approaches for cardiovascular diseases

Researchers uncover genes that play a key role in the inactivation of X chromosomes

ABPI associated with NHS for 70 years in pharmaceutical research

New, more easily administered therapies offer benefits for bleeding and clotting disorders

Gene editing within a living person for the first time

Contaminated blood scandal that infected thousands in 70’s and 80’s being investigated

Octapharma uses G:BOX Chemi XX6 imager to accurately characterise large therapeutic proteins

Non-adherence to treatment increases risk of major bleeds in young people with haemophilia, study finds

Elite Team GB cyclist launches 'Little Bleeders' to tackle inactivity in young haemophilia patients

New European study emphasizes need to enhance standard of haemophilia care in real life

An Introduction to Specialty Pharmaceuticals

Industry Focus eBook - Cell biology (5th edition) eBook

How ELRIG Is Helping Mid-Career Scientists Navigate Leadership, Career Change and Redundancy

The role of UV-Vis in biopharma QC

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