Sickle Cell Disease News and Research

Latest Sickle Cell Disease News and Research

Viewpoints: Ron Paul, USA Today on individual mandate; NYT's Greenhouse on court challenges to health law

Massachusetts leads the nation in health insurance coverage of its citizens, and Texas is dead last. You'd think that former Massachusetts governor Mitt Romney would be bragging about his role in making his state No. 1, and that Texas Gov. Rick Perry would be embarrassed by how poorly his state is doing. But that's not how the script is playing out … That's odd, though, because the mandate was born as a conservative response to President Clinton's much maligned health reform proposal.

23 Sep 2011

ODAC recommends ApoPharma's Ferriprox for FDA approval to treat transfusional iron overload

ApoPharma Inc. today announced that the Oncologic Drugs Advisory Committee (ODAC) to the U.S. Food and Drug Administration (FDA) voted 10 - 2 to recommend that the FDA grant accelerated approval of Ferriprox (deferiprone), an oral iron chelator, for the treatment of patients with transfusional iron overload when current chelation therapy is inadequate.

15 Sep 2011

Sickle cell trait does not increase risk of severe kidney disease in African-Americans

Researchers at Wake Forest Baptist Medical Center report that sickle cell trait is not a risk factor for the development of severe kidney disease in African-Americans.

15 Sep 2011

Enrollment complete in HemaQuest HQK-1001 Phase 2 study in sickle cell disease

HemaQuest Pharmaceuticals, Inc., a biotechnology company focused on developing small molecule therapeutics to treat hemoglobin disorders, announced today that it has completed enrollment in a randomized multi-dose Phase 2 study of HQK-1001 in patients with sickle cell disease.

12 Sep 2011

New blood test could help identify babies at risk of sickle cell disease

A new blood test is being developed by researchers in Cambridge and Oxford, which, for the first time, could help identify babies at risk of a severe form of sickle cell disease, allowing immediate and more intensive treatment to be given, thanks to a grant from children's charity Action Medical Research.

7 Sep 2011

New book on hemophilia, unintended consequences of medical progress

The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress (John Hopkins University Press) is the new book by NJIT Associate Professor Stephen Pemberton. The book recounts the promising and perilous history of medical and social efforts to manage hemophilia in 20th-century America.

19 Aug 2011

Cortex second quarter net loss decreases to $356,000

Cortex Pharmaceuticals, Inc. reported a net loss of approximately $356,000, or $0.00 per share, for the quarter ended June 30, 2011, compared with a net loss of approximately $2,454,000, or $0.04 per share, for the corresponding prior year period, with the difference reflecting revenues in the current year period from the Company's option agreement with Servier, France's largest privately held pharmaceutical company.

18 Aug 2011

Volunteen Program at St. Jude Children's Research Hospital

Each summer, a select group of teenagers spend five weeks of their summer vacation to help children with cancer and other catastrophic diseases through the Volunteen Program at St. Jude Children's Research Hospital. The annual program allows teens to explore career paths and develop leadership and team-building skills while helping patients.

17 Aug 2011

FDA clears Resonance Health's MRI-Q System for cardiac T2* iron assessment

Resonance Health Ltd, a medical device company specializing in imaging core laboratory services has received FDA clearance to market its MRI-Q System.

16 Aug 2011

ADVENTRX's second quarter net loss decreases to $4.4 million

ADVENTRX Pharmaceuticals, Inc. today reported financial results for the periods ended June 30, 2011.

8 Aug 2011

St. Jude hosts Sibling Star Day event for brothers and sisters of cancer patients

When a child is battling cancer or other serious illness, the entire family is affected, including siblings. Recognizing the important role brothers and sisters play in the healing process, St. Jude Children's Research Hospital recently hosted Sibling Star Day, an event dedicated to celebrating the brothers and sisters of St. Jude patients.

6 Aug 2011

Physicians to provide high-quality care, training to medically underserved community

Today, the first class of Texas Children's Global Health Corps will depart Houston for assignment in Africa. This talented team of pediatricians and family doctors will provide medical care and treatment to thousands of children and families affected by serious or life-threatening medical conditions, including sickle cell disease, malaria, tuberculosis, malnutrition, cancer and HIV/AIDS.

30 Jul 2011

EGT transfers clinical grade lentiviral vector to MSKCC

Errant Gene Therapeutics, LLC, a pioneering boutique drug development firm specializing in Rare Diseases, announced the transfer of its clinical grade lentiviral vector, TNS 9.55.3, to Memorial Sloan Kettering Cancer Center.

29 Jul 2011

Athletic trainers and coaches bear major responsibility for preventing deaths

Colleges and high schools must follow an active strategy to preventing deaths among student athletes from exertional heat stroke (EHS) and other causes, according to an editorial in a recent issue of The Journal of Strength and Conditioning Research, official research journal of the National Strength and Conditioning Association.

27 Jul 2011

Majority of parents unaware of medical research participation opportunities for children

One in nine adults have participated in medical research. In contrast, only one in 20 children have done so. Those are the findings of a poll earlier this year by the University of Michigan C.S. Mott Children's Hospital National Poll on Children's Health. The poll asked adults and parents about their views on medical research and past participation for themselves and their children.

26 Jul 2011

Young people with serious genetic blood disorder are not getting right help at school

A new study suggests young people with a serious genetic blood disorder are not getting the right help at school, especially pupils who miss lessons due to sickness.

20 Jul 2011

Thalidomide analog shows promise against sickle cell disease

A thalidomide analog is shaping up as a safe, worthy opponent of sickle cell disease, Georgia Health Sciences University researchers report.

19 Jul 2011

Study: Bone marrow transplant offers new hope for patients with high-risk leukemia

Bone marrow transplant survival more than doubled in recent years for young, high-risk leukemia patients treated at St. Jude Children's Research Hospital, with patients who lacked genetically matched donors recording the most significant gains. The results are believed to be the best ever reported for leukemia patients who underwent bone marrow transplantation.

15 Jul 2011

American Red Cross issues appeal for donors to address critical blood shortage

The American Red Cross today issued an appeal for blood donors to roll up a sleeve and address a critical shortage across the nation.

12 Jul 2011

In vivo genome editing restores hemostasis in mouse model of blood clotting disorder

Using an innovative gene therapy technique called genome editing that hones in on the precise location of mutated DNA, scientists have treated the blood clotting disorder hemophilia in mice.

27 Jun 2011

Sickle Cell Disease News and Research

Latest Sickle Cell Disease News and Research

Viewpoints: Ron Paul, USA Today on individual mandate; NYT's Greenhouse on court challenges to health law

ODAC recommends ApoPharma's Ferriprox for FDA approval to treat transfusional iron overload

Sickle cell trait does not increase risk of severe kidney disease in African-Americans

Enrollment complete in HemaQuest HQK-1001 Phase 2 study in sickle cell disease

New blood test could help identify babies at risk of sickle cell disease

New book on hemophilia, unintended consequences of medical progress

Cortex second quarter net loss decreases to $356,000

Volunteen Program at St. Jude Children's Research Hospital

FDA clears Resonance Health's MRI-Q System for cardiac T2* iron assessment

ADVENTRX's second quarter net loss decreases to $4.4 million

St. Jude hosts Sibling Star Day event for brothers and sisters of cancer patients

Physicians to provide high-quality care, training to medically underserved community

EGT transfers clinical grade lentiviral vector to MSKCC

Athletic trainers and coaches bear major responsibility for preventing deaths

Majority of parents unaware of medical research participation opportunities for children

Young people with serious genetic blood disorder are not getting right help at school

Thalidomide analog shows promise against sickle cell disease

Study: Bone marrow transplant offers new hope for patients with high-risk leukemia

American Red Cross issues appeal for donors to address critical blood shortage

In vivo genome editing restores hemostasis in mouse model of blood clotting disorder

Achieving and maintaining ISO/IEC 27001 and BS 10012 certifications

Expanding research and clinical options for children with cancer

Examining how pain could play a direct protective role in the gut

Sickle Cell Disease News and Research

Latest Sickle Cell Disease News and Research

Achieving and maintaining ISO/IEC 27001 and BS 10012 certifications

Expanding research and clinical options for children with cancer

Examining how pain could play a direct protective role in the gut

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