Hi Deb:  you’re right Deb, if it’s rare, it doesn’t seem to make the cut.  I have Interstitial Cystitis (Painful Bladder Disease). Four years to finally get a diagnosis. It is high on the list of suicidal diseases.  But hey, two of my others are on the list; kidney stones (another rare disease Medullary Sponge Kidney) and sciatica.

I don’t know how I could forget this, I also had a heart attack in 2010.

I have Dercums Disease, it is a far worse pain than many on this list. I have Fibromyalgia, it is a walk in the park compared to DD. I would rather have a kidney stones in both kidneys at the same time than have DD. Like you said very rare condition, only 1 out of 200,000 have it.

I have Dercum’s, fibromyalgia, and I’ve also had trigeminal nerve attacks in my face. For years, I thought my main problem was Dercum’s. Unfortunately, it’s not. I have a condition called him MCTD multi connective tissue disorder. MCTD is what caused my bladder to quit suddenly, and my hands just start dropping things which are clear signs of MS. I have arthritis, lupus symptoms and tested positive for RA twice and suffered with leg pain for 25 years until finally diagnosed with MCTD. If you have Dercums, Fibro, etc. I would highly suggest you go to rheumatologist and have them test you for MCTD. It will save you a lot of heartache and pain that I went through for 25 years. There’s a test your GP can use, but I would recommend going to the rheumatologist. My MCTD test with my GP was negative. The one my rheumatologist did which isn’t just a straight up test, but involves them looking at levels etc. on a case by case basis, is the one you need to take. My leg pain that haa been constant for two decades (which led me to have three unnecessary back surgeries that ruined my back to the point I was given disability at 49 years oldj) turned out to be Myleoitis, which is one of the big branches of MCTD. I’m not commenting here on the article. I think it’s a terrific selection, although I do believe that the over arching condition of Durcums and Fibro are varying levels of MCTD.