1. Donna Craig on Fibromyalgia now considered as a lifelong central nervous system disorder
    Donna Craig Donna Craig United States says:
    May 21, 2015 at 11:56 PM

    Joelene, I have had it over 30 years.  Everything they give me for pain causes me to be so tired and it really doesn't do much for the pain, I would rather go without than be so tired all the time.  I keep praying they will come up with a miracle.

    Reply
    • unfortunatly for most of the country,....
      celeste ingram celeste ingram United States says:
      May 28, 2015 at 8:01 PM

      thc treats this magnificently, did you know if you carry the gene for it, when your young if you get seriously hurt, it will show up, almost immediately, I've been dealing with this for almost 20 yrs., lived with it for 10 yrs. before I tried that,.... I'm 28

      Reply
      • Respond to Celeste Ingram
        Karen Chervinskis Karen Chervinskis United States says:
        June 24, 2015 at 4:45 AM

        Hi Celeste, do you know where I can find more information on your statement?  I was in a very serious car accident, when I was 14.  The majority of my injuries were in my neck and head.  I had 156 stiches in my head.  About 3 or 4 years later, I was going to the doctor complaining of fatigue, and pain in my shoulder and back.  Reviewing my chart, I was given pain meds and muscle relaxers all these years.  However, I was never given a diagnoses.   Moving forward, my condition has become unbearable physically, mentally and emotionally.  I was in the dental field for 32 years, and resigned my position in June 2013.  This is when I was diagnosed.  Fibromyalgia has hindered my ability to live a normal life.  My insurance is with the military, so my providers can be changed at anytime without my knowledge. I am not able to see a specialist, so my pc is attempting to treat me.   That being said, I am trying to find articles that might help him treat me.  What is thc?

        Reply
      • weed!
        Ellen Gershenbaum Ellen Gershenbaum United States says:
        July 8, 2015 at 2:10 AM

        Weed (thc) does not make the pain any better; it just makes you care a little less, which is fine with me.  it is no panacea.  the truth is, nothing works.  they have no answers,  whatever you do, DO NOT take what they suggest in the article...gabapentin (neurontin)is an EVIL drug and doesn't work...it's for sciatica.  made me gain 50 lbs in a yr and my feet swelled up like balloons.  my right foot is still fucked up.  google it and see.  lost half the weight, trying to lose the other half.  been thin my whole life until i took that drug, and the pharma co's are laughing all the way to the bank, thanks to us.  docs hane NO knowledge of the side effects of these meds.  Take this, take that, and you live with the horrendous side effects.

        Reply
        • Gabapentin
          Teri Wilson Teri Wilson United States says:
          October 26, 2015 at 1:01 PM

          I was just recently diagnosed with fibro and my Physician put me on Gabapentin. I've been on it for almost a month. We went over the pros and cons of four different medications and I chose Gaba. Due to my research it seemed to have the least negative side effects, plus it was supposed to work for RLS, which I suffer from. Initially it seemed to help within the first week or two, now nothing. I am back to waking up every night due to the pain. The one thing that it has helped is giving me mental stability, for which I am grateful. I have actually lost ten pounds since I've been on Gaba, I don't seem to have the bored, or depressed eating needs anymore. So, for me, I have liked the benefits of it but it doesn't help with the fibro. Sigh...

          Several years ago I had a knee injury and took Vicodin, that helped with my all over pain but my Doctor won't give that to me. I'm frustrated and I'm just starting this journey -- not with the pain, but with finding some sort of relief....

          Reply
          • Every Symptom UGH!
            Cindy Charamut-Glines Cindy Charamut-Glines United States says:
            November 3, 2015 at 4:03 PM

            Right now I take 2700mg of Gabapentin, 225mg of Effexor, 50mg of Topamax twice daily, 1mg 1 1/2 Klonipin at bed, 10mg Ambien at bed, 10mg Lisinipril, 10mg Simvistatin, 40mg omeprazole, 20mg Loratadine and 50mg Robaxin twice daily. I have Osteoarthritis, Degenerative Disc Disease, I have Bariatric surgery and lost 107lbs, TMJ and I am have surgery on the right side of my jaw on Dec. 3 because it is dislocated and the Trigeminal nerve is pinched (very painful),knees are shot right one really bad. I recently had an incident where I thought I was having a stroke speech was really bad and the headache was terrible it was my Fibro and that is when my Topamax was increased I was scared to death. Four and half years ago my fiancé passed away and I found him sitting up on our couch he was 50. The trauma made my Fibro worse and it has not stopped since. I also was in a motorcycle accident 11 months after he died on his motorcycle. I had a nervous breakdown at my job 8 months after he died and I cannot work because of my physical and emotion health. I have always worked  many years 2 jobs or self employed owning my dog grooming businesses. I am only 53. Depression, anxiety, PTSD,Pain,Frustration,New symptoms,relationship issues and losing friends and especially having family walk away and I don't know why. I hate Fibromyalgia and being in pain fronted to toe everyday. And the worst is having to say I don't feel good and knowing even my boyfriend doesn't get it. It is not like I stubbed my toe. I see a therapist every week since the death of my fiancé and she is great. But year after year of this illness is hard. I have great doctors but this illness is  so unpredictable. I just wish you all the best with your battle. Relief is a hard thing and I have no answer. Understanding is what I wish I had from family and friends.

            Reply
            • I have almost all of those
              Denise Wadsworth Denise Wadsworth United States says:
              November 27, 2015 at 5:51 PM

              Cindy, I have almost all of those symptoms and then some like Rheumatoid Arthritis so trying to figure out which one is flaring is a chore. I am so sorry for your loss. Dealing with this disease alone sucks, I have had it for 30 years so I know some of my warning signs.  If you need to talk just let me know and I will send a phone number or Facebook message me. Here is me sending you a big hug through the wires.  Have a happier day.

              Reply
            • I hear you Cindy
              Captain Jack Captain Jack United States says:
              March 23, 2016 at 8:25 PM

              I suffer from Hashimoto's Thyroiditis and Fibromyalgia and have had Fibro pain ever since 1975 and there has only been a handful of days in all these years where I was actually pain free.  I too have tried everything under the sun and then some and it wasn't until recently I saw a pain doctor.  He initially put me on extended release flexeril (Amrix) and it made me feel worse so I quit taking it and looked it up only to discover it was just extended release flexeril which I had tried multiple times in the past so then he put me on percocet and it is the first med that has given me some relief.  I do not take the entire pill, I cut them in thirds and only take 1/3 in the AM and rarely do I have to take more than that. It doesn't relieve the pain in its entirety but it deadens it enough so that I can function.  I try to go to the gym to exercise and I pay for it for several days just with a 45 minute light workout. I know the addictive risks of opioids but as far as I'm concerned the benefits outweigh the risks. I understand your pain and if those who have abandoned you could only experience what we go through for a month they would look at it differently.  Trust me, multiple doctors and every med that you could conceive of was tried on me from Xanax to antidepressants all of which made things worse for me.  Honestly I would rather take nothing, but I have tried, and things become unbearable.  I wish you the best and hope that someday there will be something to rid this horrific illness.  Feel free to contact me, it would be interesting talking to someone else with the problem to see what they're experiencing.

              Reply
            • Understanding
              John Hinman John Hinman United States says:
              May 16, 2017 at 8:37 AM

              I may be the only man on this blog but for 9 years I have suffered in different levels, but always debilitating. Severe Fatigue, Flu symptoms and all kinds of severe pain. Unable to work. One thing I wish I got from Doctors, friends and family, is believing that I truly suffer and understand as best they can what I'm going through. I had one Doctor laugh at me when I said I have Fybro, the rest just brush it off as if it's nothing, when Fybro has put the thought of suicide in my head many times. The only people who believe and understand are other people who suffer with it.

              Reply
          • If you haven't switched meds yet, an alternative to Neurontin is Lyrica.
            Melissa Janeway Melissa Janeway United States says:
            December 7, 2018 at 3:27 AM

            If you haven't switched meds yet, an alternative to Neurontin is Lyrica.  They're both gaba meds..  Lyrica just tends to work better for nerve related pain.  Mental health wise, I believe they're fairly equal.

            Reply
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