1. My 44 year old son was also diagnosed with LHON 14 months ago
    Nan Smith Nan Smith United States says:
    June 8, 2013 at 12:04 PM

    My 44 year old son was also diagnosed with LHON 14 months ago.  He started the  high dose Idebenone treatment soon afterwards and feels his the visual acuity of his remaining peripheral vision is better.  He can still see his feet.  Off the Idebenone for several weeks, his feet became blurry.  

    One strange occurrence:  he put a pair of binoculars up to his eyes and could count fingers 80 feet away.  ?????  Anyone hear f

    Reply
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