1. Desparate need of PTH replacement
    Sue Sue Canada says:
    July 26, 2012 at 2:58 PM

    This study gives some hope for those that are suffering from hypoparathyroidism. I pray Health Canada approves the PTH replacement soon so the patients with this rare condition can get on with their lives.  I had my thyroid removed in 2010, and have been suffering with the effects of hypoparathyroidism since. The twitching, numbing, depression, cramping, headaches, are symptoms I have on a daily basis.

    Reply
    • Hello Sue,I had my thyroid (and parathyroids) removed in June....I feel
      Barb Barb Canada says:
      September 9, 2012 at 10:26 AM

      Hello Sue,

      I had my thyroid (and parathyroids) removed in June....I feel your pain.  I'm getting a little desperate myself...was just surfing for a clinical trial in Canada that I might be able to participate in when I found your post.  More than willing to be a Guinea pig to help find a solution to this.  Are you anywhere near Ottawa?  If you hear of any studies looking for volunteers, please send the info my way.  

      Hang in there!

      Barb

      Reply
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