Opinion

  1. Michelle Goebel Michelle Goebel United States says:

    I went through all of 2012 telling my primary doctors that I was having severe migraines, which I never have had before, my vision was very blurred and I felt disoriented for periods of time.  My short term memory was going as well as the horrible ringing in my ears. My doctor said it was just stress because I was going through a divorce.  Then on 12/17/2012 I lost my vision completely while at work, I was taken to the hospital and they found that I have a small brain tumor but that wasn't causing the blindness.  It took until 02/2013 during a lumbar puncture to find that I had extremely elevated spinal fluid in my brain.  I have been on Diamox for over a year which has caused me to be so low in Potassium that my heart is now not pumping sufficiently.  My kidneys are also being impacted by the Diamox.  I have had 7 lumbar punctures and have been having 3 different types of seizures.  I had a grand mal seizure where I was passed out on my left leg for over 7 hours and cut off the circulation to my leg so I now don't have full feeling or use of my leg.  Pseudotumor has caused me to be permanently disabled and my neurologist is working to help me get to John's Hopkin's in hope that I can get the help I need.  The neurosurgeons in Orlando will only do a shunt and that is just not an option for me.  I need help and I'm a single mom who lost her job after 14 years with my company because I was missing so much work because of this.  I can't keep going like this, this is not living it is suffering everyday.

The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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