A novel approach for funding children's genetic disease research

Parent Project Muscular Dystrophy together with Trisomy 18 Foundation are among 100 charities that earned a $25,000 grant during Round 1 of the Chase Community Giving Challenge on Facebook. Now in Round 2, Chase Bank has given them the opportunity to compete for an additional $1 Million prize and five $100,000 prizes, to be decided by public vote from January 15-22, 2010.  

Working together, these charities are advocating a novel approach to ask the Facebook public to support all charities with their votes that focus on saving children's lives through funding of genetic disease research.

Parent Project Muscular Dystrophy's Founding President and CEO Pat Furlong is thrilled to be part of this partnership. "As rare diseases, one of our biggest struggles as organizations is to raise awareness about our diseases. In the 16 years that PPMD has been fighting to end Duchenne muscular dystrophy, we, like the other members of this Partnership, have tried to reach as wide an audience as possible. This incredible contest provides us the largest awareness platform we have known and give us an opportunity to tell our families' stories. By uniting as a Partnership, we are showing the Facebook community the importance of collaboration in advancing genetic research.  Research that will save the lives of our children and our children's children. A victory for any of us is a victory for all of us."

"In the wake of the tragic earthquake in Haiti, we are all awakened to the fragility of life," commented Victoria Miller, Executive Director of the Trisomy 18 Foundation.  "The parents who are powering the activism in our Chase Campaign Partnership know this lesson and live it every day in battling for the lives of their children struggling against rare diseases.  Every day we work hard through these organizations for more funding for more research.  What unites us as Partners in this Chase Community Giving campaign is that we have a common need for more collaborative genetic research that accelerates the translation of science into treatments that will save all our children's lives.   And that takes awareness and activism and dollars and a bigger vision than one disease at a time.  The advances in any one disease can literally transform the science for us all, and that's why we know our causes are united. "

The Partnership has a simple goal -- to advocate for the funding of Children's Genetic Disease Research advanced through the Chase Community Giving contest.   All Facebook users have an incredible opportunity to use their 5 votes for 5 Children's Genetic Disease Research Charities in Round 2 of the Contest now through Midnight ET Friday evening, Jan 22nd.  

Those 5 charities are:


Parent Project Muscular Dystrophy


The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
Post a new comment
You might also like...
NUS researchers discover a new way to interpret unsolved Mendelian diseases