Mycosis Fungoides is a very rare form of lymphoma affecting approximately 1,000 people per year in the United States. To provide insight for patients with Mycosis Fungoides and ensure they have access to information about their disease, the National Comprehensive Cancer Network® (NCCN®) has published the NCCN Guidelines for Patients® and NCCN Quick Guide™ for Mycosis Fungoides, completing the series of NCCN Guidelines for Patients®: Non-Hodgkin's Lymphomas (NHL). These resources are made possible through funding from the NCCN Foundation®.
"As part of a relatively small patient population, people diagnosed with Mycosis Fungoides have limited credible resources from which to learn about their disease," said Marcie R. Reeder, MPH, Executive Director, NCCN Foundation. "NCCN Foundation is proud to offer these patients and their caregivers educational resources tailored specifically to their needs in order to empower them to make informed decisions about their health care."
NCCN Guidelines for Patients, patient-friendly translations of the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®), are easy-to-understand resources based on the same clinical practice guidelines used by health care professionals around the world to determine the best way to treat a patient with cancer. Each resource features unbiased expert guidance from the nation's leading cancer centers designed to help people living with cancer talk with their physicians about the best treatment options for their disease. These resources are available free-of-charge at NCCN.org/patientguidelines. Print versions are available to order on Amazon.com.
NCCN Guidelines for Patients and NCCN Quick Guide™ sheets—one-page summaries of key points in the patient guidelines—are written in plain language and include patient-friendly elements, such as questions to ask your doctor, a glossary of terms, and medical illustrations of anatomy, tests, and treatments. NCCN Guidelines for Patients and NCCN Quick Guide™ sheets DO NOT replace the expertise and clinical judgment of the clinician.
National Comprehensive Cancer Network® (NCCN®)